Support

 

If you have been diagnosed with a form of muscular dystrophy or a myopathy, or if this is the case for one of your family members or close friends, please know that there are sources of support available. A useful first place to start is the Muscular Dystrophy Association (MDA), which provides emotional and informational support. Visit the MDA Local Offices section of the MDA web site for further information. Another useful web site for support information is the Genetic Alliance site. Or, you may find it helpful to contact your local hospital and ask to speak with a genetic counselor. She is likely to know, or to be able to find out about support group information. Also, genetic counselors are available to discuss genetic-related information about dystrophies and myopathies, as well as provide emotional support. Visit the links section to view a more extensive list of informational and support related web sites.

 

 

 

 

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