Muscular Dystrophy
Campaign
www.muscular-dystrophy.org
7-11 Prescot Place
London SW4 6BS, UK
+44(0)171-720-8055
Information on Anaesthetics:
http://www.muscular-dystrophy.org/information/
KeyFacts/anaesth.html
info@muscular-dystrophy.org |
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Family Village: A Global Community of Disability-Related
Resources
http://www.familyvillage.wisc.edu/
Waisman Center,
University of Wisconsin-Madison
1500 Highland Avenue
Madison, WI 53705-2280
familyvillage@waisman.wisc.edu
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Genetic Diseases
Website
http://mcrcr2.med.nyu.edu/
murphp01/homenew.htm |
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Genetic Alliance
www.geneticalliance.org
4301 Connecticut Ave, NW, Ste 404
Washington, DC 20008-2304
202-966-5557 |
Duchenne Parent
Project
www.parentdmd.org
1012 North University Blvd.
Middletown, OH 45042
513-424-0696 or
800-714-KIDS |
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The Muscular
Dystrophy Family Foundation
www.mdff.org
2330 North Meridian Street
Indianapolis, Indiana 46208-5730
800-544-1213 |
Gene Tests-Gene
Clinics
http://www.genetests.org/
GeneTests, CH-94
Children's Hospital & Regional Medical Center
PO Box 5371
4800 Sand Point Way NE
Seattle, WA 98105-0371
Fax: 206-527-5743 |
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Sibling Support Project
http://www.seattlechildrens.org/
parents/sibsupp.htm
PO Box 5371
Seattle, WA 98105-0371
Children's Resource Line 1-877-526-2500
info@chmc.org
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National Easter
Seal Society
www.easter-seals.org
230 W. Monroe Street, Ste. 1800
Chicago, IL 60606
312-726-6200 |
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National Information
Center for Children and Youth with Disabilities
www.kidsource.com/NICHCY/index.html
P.O. Box 1492
Washington, DC 20013
800-695-0285 |
DNA From the
Beginning
www.dnaftb.org
Dolan DNA Learning Center
1 Bungtown Road
Cold Spring Harbor Laboratory
Cold Spring Harbor, NY11724
516-367-5170
dnalc@cshl.org |
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National Institutes
of Health
www.nih.gov
9000 Rockville Pike
Bldg. 31, Room 2B10
Bethesda, MD 20892
301-496-1766 |
National Organization
for Rare Disorders (NORD)
www.raredisease.org
P.O. Box 8923
New Fairfield, CT 06812-8923
800-999-6673 |
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Neuromuscular
Disease Center
www.neuro.wustl.edu/neuromuscular
Box 8111-Neurology
660 South Euclid Avenue
Saint Louis, MO 63110
314-362-6981 |
Hospice Directory
www.hospiceaid.com/hospicedir.asp |
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National Society
of Genetic Counselors
www.nsgc.org |
Muscular Dystrophy
Association
www.mdausa.org
National Headquarters
3300 East Sunrise Drive
Tuscon, AZ 85718
800-572-1717 |
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Congenital
Myopathies
Joshua Frase Foundation
http://www.joshuafrase.org/
167 Milk Street, Suite 300
Boston, MA 02109
1-888-817-JOSH.
alison@joshuafrase.org |
Facioscapulohumeral
Muscular Dystrophy:
FSH Society
www.fshsociety.org
3 Westwood Road
Lexington, MA 02420
781-860-0501 |
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Myotonic Dystrophy:
Online Myotonic & Congenital Dystrophies Support Group
International
www.angelfire.com/pa2/
MyotonicDystrophy/index.html
185 Unionville Road
Freedom, PA 15042
724-775-9448 or 724-774-0261
tallships@usa.net |
Myotonic Dystrophy
www.myotonicdystrophy.com
764 Old Westbury Road
Crystal Lake, IL 60012
815-477-0047
myotonicdystrophy@yahoo.com |
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Myotubular
Myopathy:
X-Linked Myotubular Myopathy Resource Group
www.mtmrg.org
2602 Quaker Drive
Texas City, TX 77590
409-945-8569 |
The Foundation
for Gene and Cell Therapy: Jesse's Journey
P.O. Box 5099
London, Ontario N6A 4M8
519-645-8855
www.jessesjourney.com
fgct@jessesjourney.org |
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